From November 2024 the members of the Steering Group are:

Austria: 

Eva Amerstorfer , pediatric surgeon (co-chair), Graz

Germany: 

Ekkehart Jenetzky , medical doctor, epidemiologist, Mainz and Witten

Judith Lindert, pediatric surgeon, Rostock

Miriam Wilms, patient association, SoMA

Italy:  

Anna Morandi , pediatric surgeon (chair), Milan

Dalia Aminoff , patient organisation (secretary)

Netherlands: 

Michel Haanen , patient organisation

Iris van Rooij , epidemiologist, Nijmegen

Herjan van der Steeg , pediatric surgeon Nijmegen

Ramon Gorter , pediatric surgeon, Amsterdam

Czech Republic: 

Lucie Pos , pediatric surgeon, Prague

Sweden: 

Pernilla Stenström , pediatric surgeon, Lund


Other full members:

Austria:  

Stefan Deluggi and Johanna Ludwiczek , pediatric surgeon, Linz

Holger Till , pediatric surgeons, Graz

Mazeena Mohideen , patient organisation

Wilfried Krois , pediatric surgeon, Vienna

Belgium:  

Marc Miserez , pediatric surgeon, Leuven

Germany:  

Eberhard Schmiedeke , pediatric surgeon, Bremen

Heiko Reutter , medical doctor, geneticist, Bonn

Martin Lacher and Jan Goseman, pediatric surgeon, Leipzig

Stephan Rohleder , pediatric surgeon, Mainz

Judith Felcht, pediatric surgeon, Mannheim-Heidelberg

Nicole Schwarzer , patient organisation  

 Italy:   

Paola Midrio , pediatric surgeon, Treviso

Pietro Bagolan and  Barbara Iacobelli , pediatric surgeon, Rome

Caterina Grano , psychologist, Rome

Francesco Fascetti-Leon , pediatric surgeons, Padua

Ernesto Leva , pediatric surgeon, Milan

Gabriele Lisi , pediatric surgeon, Pescara

Alessio Piniprato , pediatric surgeon, Alessandria

Netherlands: 

Ivo de Blaauw , pediatric surgeon, Nijmegen

Carlo Marcelis , clinical geneticist, Nijmegen

Chris Verhaak , psychologist, Nijmegen

Marieke Witvliet , pediatric surgeon, Utrecht

Pim Sloots , pediatric surgeon, Rotterdam

Spain:  

Araceli García Vázquez , pediatric surgeon, Madrid

Carlos Giné , pediatric surgeon, Barcelona

Alejandra Vilanova-Sánchez , pediatric surgeon, Madrid

Maria Fanjul , pediatric surgeon, Madrid

Ukraine:

Igor Makedonsky , pediatric surgeon, Dnepropetrovsk

Turkey: 

Hakan Çavuşoğlu , pediatric surgeon, Ankara

Emre Divarci , pediatric surgeon, Izmir

Israel:

Inbal Samuk , pediatric surgeon, Petach Tikva



Associated members

Germany – Nagoud Schukfeh , pediatric surgeon, Hannover

Germany – Carmen Kabs, pediatric surgeon, Munich  

Germany – Sabine Grasshoff-Derr , pediatric surgeon, Frankfurt am Main

Austria – Carlos Reck , pediatric surgeon, Vienna

Netherlands – Paul Broens, pediatric surgeon, Groningen

Switzerland – Stefan Holland-Cunz , pediatric surgeon, Basel 

Italy – Lucia Migliazza, pediatric surgeon, Bergamo 


Patient organizations

AIMAR (Italy)

SOMA (Germany)

Vereniging Anusatresie (The Netherlands)

SOMA (Austria)